Bride desperately needs kidney donation so she can be dialysis-free on wedding day
A woman, who has been waiting for a kidney transplant for more than ten years, says it would be a dream come true if she could be dialysis-free on her wedding day.
Eamie Gormley, 30, recently got engaged to her longtime partner Ben.
Now, Eamie from County Tyrone, Northern Ireland, would like to celebrate her wedding with her family and friends, knowing that she has lost the burden of dialysis, Belfast reports live.
She said: “I want to be completely dialysis-free for my marriage and I can only be dialysis-free with someone’s help if they’re considering donating a kidney to me.”
At just six years old, Eamie was diagnosed with the rare kidney disease, MPGN-2 – often referred to as “dense deposit disease” – due to hampering of the kidneys’ ability to filter blood and produce urine, making them dense.
The autoimmune disease affects both the kidneys and the eyes and that’s where Eamie’s journey with kidney failure began.
She explains: “I started peritoneal dialysis (PD) for five years, from the age of eight until the age of 13, when I received my first transplant.
“PD involved a catheter (tube) being surgically inserted into my stomach and I was hooked up to a machine seven nights a week, overnight, for ten whole hours. There was never a night off with PD then. .”
Unfortunately, seven years later, when she turned 20, Eamie’s kidney began to reject and she found herself on dialysis again.
But this time she was on hemodialysis, which is much harder on her body.
“It involves cleaning my blood and ridding it of toxins, which we all encounter in what we eat or drink, three times a week at my local dialysis unit at Omagh Hospital,” she said. declared.
“Over the years I have tried different methods of dialysis which unfortunately for me did not work. However, I now use a neck line, which is my last resort before moving on to my legs so I can benefit from renal replacement therapy.”
Eamie has now been waiting 11 years for a kidney transplant because her body is 99% antibody-free, making it much harder to get a potential match than the average person.
“Basically, the more antibodies a person has, the harder it is to successfully match a potential transplant,” she added.
“In those 11 years I had three potential matches for a transplant but unfortunately none of them ended up happening for different reasons and as always it was completely out of my control.
“As time passes, the wait gets longer but the hope for that ‘perfect call’ becomes less and less and for that I’m exhausted. I’m tired and I feel depressed but I know I haven’t come out .
“Many of these calls come from a pool-matching system in which blood samples are taken regularly and people are placed in a pool in the hope of a computer-generated match.”
Since getting engaged to Ben, Eamie tries to look forward to planning their wedding without worrying about whether she’ll have the energy to socialize for an entire day and not be sick or physically exhausted.
“The only world I’ve known is three weekly hemodialysis sessions, 52 weeks a year and that’s been going on for 11 years in May,” she said.
“Dialysis is physically and mentally exhausting, even on my best days, but I have no choice but to continue. If I don’t get dialysis, I will go into cardiac arrest and die. I just want to be free from all this burden in my life and these dialysis sessions.
“I want to be able to look at my future, my marriage, my partner and feel ‘normal’ when my life has been put on so much hold due to being at the mercy of a dialysis machine for so long. . “
Eamie hopes for a “strong and stable state of health” in 2022 and beyond.
And she also knows that there are many positive stories of organ donation.
“A good friend of mine received a transplant from his friend in the summer of 2021 and they are both doing great, back to work and enjoying life to the fullest,” she said.
If this is something you think you can help Eamie, please visit DonateLife.co.uk.
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